Author Topic: Hey! Where has ... (Read 5490 times)

Bill · « **on:** October 28, 2003, 04:04:22 PM »

Bernie been hiding?
Come out ... Come out ... Wherever you are.

Bernie · « **Reply #1 on:** October 28, 2003, 09:34:59 PM »

I'm here everyday. Just don't post. Dam Lupus has most of my joints swollen. Still working though. My employer has given me a set route in Orange County to make it easy for me. I'll be back. " Ain't that what are new Governor says in a Movie" LOL

Thanks for thinking of me Bill. Have you been wearing your protective mask due to the Smoke in the air? Bummer to see all the fires here in Southern Calif. I was in Lake Forest today and Boy! Funky lookin Skies! Well time to take my prednisone for the RA Eckkkkkkk! And for my skin,
"Plaquenil " hydroxychloroquine

I'm always at home here daily.

Keeps me sane ya know.

Bill · « **Reply #2 on:** October 29, 2003, 12:50:20 AM »

For a while Bern, it was touch and go with the Temecula fire but they have that one more or less under control.

Take care of yourself Bernie!!!!!

beacher · « **Reply #3 on:** October 29, 2003, 01:03:44 PM »

Hey Bernie, wish I had seen this post before, but somewhere, in the past couple of days, I saw something about a new treatment, with an "old" medicine, used for something else, that is now being used to treat lupus. . .I suspect that you already are hip to that, 'cause I just put "lupus" into Sherlock, and came up with a bunch of sights, and I can't imagine you NOT having already done that! Anyway, if you weren't aware of that, you might do a little hunting around. Hope that you're feeling a little better.

krissel · « **Reply #4 on:** October 29, 2003, 11:34:24 PM »

Bernie, you probably aren't aware of how much we do think of you.

I read about that lupus treatment several days ago and was going to send you the link but I figured you probably already knew about it. But for those who are curious...

QUOTE

A drug used to prevent organ rejection in transplant patients works as well as chemotherapy for treating kidney failure from lupus but with fewer side effects, a study shows.

Side effects from chemotherapy, including hair loss, anemia, loss of appetite and nausea, sometimes prevent some patients from completing their treatment.

"Having an alternative that provides fewer side effects is a very important thing for patients," said Sandra C. Raymond, president and chief executive officer of the Lupus Foundation of America Inc. She noted there haven't been any new drugs for lupus in 30 years.

The research compared the effectiveness of oral doses of CellCept, which suppresses the immune system, with chemotherapy, the standard treatment for patients with lupus nephritis, a serious complication of lupus

full article

I sure hope you don't ever get to the point where you need to use that drug.

Good to know you are lurking here at TS, Bern.

We would be lost without our BIOB.

RHPConsult · « **Reply #5 on:** October 30, 2003, 12:01:07 AM »

Your post is reassuring, Bernie.

Thanks.

These days it's easy to worry about folks located anywhere south of the Tehachapis

As long as you keep looking-in on TeeEss, then we're going to have a lot less to BIOB!

Best,

DP

Dreambird · « **Reply #6 on:** October 30, 2003, 12:24:38 AM »

Hey Bernie... nice to see you around again...

Don't be pushing yourself too hard!!

Gary S · « **Reply #7 on:** October 30, 2003, 08:51:02 AM »

Hi Bernie.

Like DB says, don't push yourself.

I think of you a lot Buddy.

pendragon · « **Reply #8 on:** October 30, 2003, 09:14:59 AM »

Yeah, and another thing Bern, when I installed Panther by doing an Upgrade Install and then later had to do an Archive & Install, where were you when it was time to BIOB?

You are missed, so remember, we know where you live.

Harv

Bernie · « **Reply #9 on:** October 30, 2003, 09:17:36 AM »

Hi Everybody

Believe me I've researched every topic of DLE "Discoid" ( old term meaning Butterfly rash) Now called Cutaneous lupus ( within the skin only) NOT in the Blood "Systemic" I only Get RA (swellling of the joint tissues) And Lesions on areas of my body that are exposed to the sun. These lesions Scar you for life.

In my case. I'm asymmetrical ( I think I spelled that correct? ) Meaning Both sides at the same swelling of the joints ( Take your pick) as with the lesions also. Weird huh

I stopped taking all the Meds quite sometime ago. Plaquenil ( hydroxychloroquine) is an Anti-malarial drug. I Slows my immune system so it doesn't help fight against my body. ( Dern immune system must be running Windows Os) LOL

Anyway, I want my immune system to at least try to fight back. I feel much better without the drugs. As long as I keep active I don't feel the RA.
I just hate applying the Gooey SPF 100000 All day long. LOL Sure glad the Summers sun is saying good bye for a while. Well Time to get to work. Cya Yes! I'm done complaining.

LR827 · « **Reply #10 on:** October 31, 2003, 09:56:21 AM »

I have to chime in on this one. Certain illnesses are known to have strong psychological overtones, and lupus is one of them, along with all the auto-immune disorders (disorders wherein the immune system does not recognize its own tissues, and attacks it as though it is a foreign body). These disorders are not, by any means, "psychological" conditions that are "all in your head" -- but they are exacerbated by stress. I found an article which describes it, although it is fairly technical, but I think you can get the picture. I'll paste it in here, because I'm not sure you can view this article without signing in (Medscape.com). The important point here is that you can use whatever techniques that work for you, to reduce stress. I know, we all should do that and enjoy our lives more -- but it is especially important for you to know that you can literally avoid flare-ups of your illness by relaxing and not letting the little, really inconsequential things get to you. I hope this helps, a little, especially the Conclusions at the end:

QUOTE

Flares in patients with systemic lupus erythematosus are associated with daily psychological stress.
Psychother Psychosom 2003 May-Jun;72(3):159-65 (ISSN: 0033-3190)
Pawlak CR; Witte T; Heiken H; Hundt M; Schubert J; Wiese B; Bischoff-Renken A; Gerber K; Licht B; Goebel MU; Heijnen CJ; Schmidt RE; Schedlowski M
Department of Medical Psychology, Hannover Medical School, Hannover, Germany. pawlak@staff.uni-marburg.de.
BACKGROUND: The aetiology of systemic lupus erythematosus (SLE) remains unclear. Clinical observations and a small number of studies performed so far suggest an association between psychological stress and self-reported symptoms of SLE patients. This longitudinal study was designed to investigate whether daily psychological stress is associated with flares in SLE patients, measured by clinical and laboratory parameters. METHODS: Female SLE patients (n = 41) were followed over a period of six months. Daily stress was monitored by a hand-held PC diary programmed with 44 items based on standardized measures and clinical experience. Once every four weeks patients visited the outpatient clinic for medical evaluation. Disease activity was evaluated using the European Consensus Lupus Activity Measurement (ECLAM), laboratory parameters, and intake of steroids. RESULTS: Classification and regression tree (CART) patient-wise analyses revealed that SLE patients with vs. without flares using complement and ECLAM as activity measures show greater negative self-ratings in mood, and social duties (p < 0.01). In addition, mixed model analysis of variance showed that daily hassles with social relationships were significantly associated with flares in SLE measured by an increase in steroid medication >5mg/d (p < 0.01). CONCLUSIONS: These results suggest that psychological stress is associated with flares in SLE. Particularly daily stress with social relationships and social duties may be factors to be related to the course of disease activity in SLE. [Copyright 2003 S. Karger AG, Basel].

george · « **Reply #11 on:** October 31, 2003, 12:41:24 PM »

Hi Bernie, (my introducer to TS) my very best wishes to you, sincerely hope your health improves .
Regards from this side of the pond.
George.

Russ Kidd · « **Reply #12 on:** November 01, 2003, 03:42:46 AM »

Hey, Bern, I've been wondering about you, too. Just like George, you introduced me to TS--you found me over on MacFixIt and invited me over.

You and I discussed ailments a bit back then. I'm sorry to hear yours is flaring up.

Hey folks, did you know Bernie's a former trumpet player?

I wouldn't be surprised if you got a some smoke and even ash in your area when the Santa Anas were blowing it all towards the ocean a few days ago.

Early in the week, the Simi Valley fire was advancing toward my neighborhood and I was getting pretty nervous. Parts of Chatsworth were evacuated and I'm just four miles from there. Fortunately, the winds reversed the next day and that fire went the other way.

It's good to hear from you, Bern. Hope things look up soon.

Russ

snuffysbluff · « **Reply #13 on:** November 01, 2003, 04:16:02 AM »

I also can blame it on Bernie that I stuck with TS.
Although Tacit got me here, when I read some of Bernie's posts I remember thinking..."HUH?"

At last...Proof that extraterestrials DO exist.

Nanu, Nanu, old buddy.

kelly · « **Reply #14 on:** November 01, 2003, 09:35:02 AM »

Hi Bern.

Listen to "Doc" Lorraine and take it as easy as you can.

Good luck Pal.

News:

Author Topic: Hey! Where has ... (Read 5490 times)